My take on life with SMA. Dive into tales of resilience, misadventures, and the humorous side of defying odds from the seat of a wheelchair.
Language isn’t just a medium of communication; it’s my lifeline to the world. My physical limitations mean that spoken and written words are my exclusive means of expressing myself. This unique perspective has deepened my appreciation for the beauty and complexity of language, transforming everyday interactions into opportunities for introspection and growth.
I’ve always been captivated by the electrifying drama of college basketball, where raw talent, unbridled passion, and competition converge. The journey towards March, with its highs and lows, is a remarkable metaphor for life itself. As the season begins to tip off in full effect, Jimmy V Week serves as a poignant reminder of life’s …
I was recently in a car accident. Fortunately, I was largely unharmed, though my vehicle sustained cosmetic damage. While the incident itself was relatively minor, it shone a glaring light on a significant issue – the exorbitant costs associated with accessibility for individuals with disabilities. This issue extends far beyond my recent experience with car …
Read more “The Disability Tax and the Cost of Being Disabled”
Hope is a powerful force that fuels our dreams and aspirations. It’s the belief in what’s possible, the spark of optimism that lights our path. Recently, I revisited the heartwarming series “Ted Lasso” on Apple TV, and in particular, the season one finale titled “The Hope That Kills You.” This episode explores the idea that …
Life has a way of throwing us curveballs, and sometimes, those curveballs land us in the hospital. I’ve had my fair share of days spent confined to a hospital bed, battling various illnesses and recovering from surgeries. By the age of 12, I’d already accumulated over a year’s worth of hospital days. These days, they’re …
“Adulting” has become a buzzword of our times, often thrown around in jest to describe the grueling ordeal of managing bills, maintaining a social calendar, or just doing laundry. Sure, these daily tasks are a rite of passage into adulthood, but for me, the essence of becoming an adult isn’t found in the laundry pile; …
Job hunting and career development, while challenging for most, is a significantly different landscape for someone with a physical disability like mine. These are my experiences – the struggles, the innovations, and the relentless pursuit of professional fulfillment.
Regularly, I’m asked a question that seems simple on the surface but is profoundly complex in its depth: “What would you do if you woke up one day and had 24 hours without Spinal Muscular Atrophy (SMA)?” At first glance, this might seem like an invitation to a world of infinite possibilities, a chance to …
Being diagnosed with Spinal Muscular Atrophy might seem like an incredible challenge to some, and indeed, it has its moments. But SMA has also granted me an incredibly profound perspective on life.
I’ve been labeled “inspirational” in countless scenarios. Whether I’m simply navigating a grocery store, sharing a candid moment about my life on social media, or just enjoying a drink with some friends at a bar, this title shadows me, attaching itself to my identity with an adhesive persistence. The ordinary is suddenly deemed extraordinary, and …