Language isn’t just a medium of communication; it’s my lifeline to the world. My physical limitations mean that spoken and written words are my exclusive means of expressing myself. This unique perspective has deepened my appreciation for the beauty and complexity of language, transforming everyday interactions into opportunities for introspection and growth.
I’ve always been captivated by the electrifying drama of college basketball, where raw talent, unbridled passion, and competition converge. The journey towards March, with its highs and lows, is a remarkable metaphor for life itself. As the season begins to tip off in full effect, Jimmy V Week serves as a poignant reminder of life’s …
Hope is a powerful force that fuels our dreams and aspirations. It’s the belief in what’s possible, the spark of optimism that lights our path. Recently, I revisited the heartwarming series “Ted Lasso” on Apple TV, and in particular, the season one finale titled “The Hope That Kills You.” This episode explores the idea that …
Regularly, I’m asked a question that seems simple on the surface but is profoundly complex in its depth: “What would you do if you woke up one day and had 24 hours without Spinal Muscular Atrophy (SMA)?” At first glance, this might seem like an invitation to a world of infinite possibilities, a chance to …
Being diagnosed with Spinal Muscular Atrophy might seem like an incredible challenge to some, and indeed, it has its moments. But SMA has also granted me an incredibly profound perspective on life.
The duality of my existence is shaped not just by my medical condition but by the world’s pace around me. In a world where speed, efficiency, and connectivity dominate, the Digital Age unfurls its wings, offering promises of empowerment and transformation. For many, technology is a tool, a means to an end. But for me, …
If you’ve met me in person or follow me on social media, you probably see me as the ever-smiling guy in the wheelchair. Scrolling through my socials, it’s easy to see a narrative of relentless optimism and joy. Daniel Negreanu once remarked about my positivity, saying, “This guy is loving his life, so why don’t …
Being a fiercely competitive person at heart, my Spinal Muscular Atrophy often feels like a barrier, keeping me from indulging in sports or even most video games. But amidst these restrictions, I found a game that not only quenches my competitive thirst but also offers an equal playing field: poker.
We live in a world where our stories are often shaped by our circumstances, by the labels thrust upon us, and the expectations that society subtly (and sometimes not-so-subtly) layers on our shoulders. For someone like me, diagnosed with a condition like Spinal Muscular Atrophy (SMA), the tale is frequently one of battles—against one’s body, against perceptions, against time itself.